Indy Standard

The Indiana House has given unanimous approval to a bill introduced by State Representative Kyle Pierce, aimed at enhancing privacy protections for consumers using genetic testing services. House Bill 1521, spearheaded by Rep. Pierce from Anderson, mandates that genetic testing companies like 23andMe and LifeDNA must obtain explicit consent from individuals before utilizing or sharing their genetic data.

Rep. Pierce emphasized the importance of consumer control over personal information, stating, "This bill is focused on making sure Hoosiers have control over their most personal information – their genetic data." He added that the legislation would ensure transparency and prevent misuse of confidential material.

The proposed law requires providers to inform consumers about how their biological material is collected, used, and safeguarded. It also prohibits sharing genetic data with insurers, data brokers, or employers without stripping identifying details such as names and addresses. This measure aims to protect consumers from potential discrimination based on their DNA.

Pierce further highlighted the significance of the bill in preventing unfair targeting or discrimination: "Protecting genetic privacy not only protects personal security but also ensures Hoosiers are not unfairly targeted or discriminated against based on their DNA."

With its passage in the House, House Bill 1521 now advances to the Senate for further evaluation. More information about this legislative process can be accessed at iga.in.gov.